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LE in right leg to knee

PostPosted: Thu May 29, 2008 4:46 pm
by npbloom
Hi everyone,

I've had LE for almost 20 years now and it has been a slowly progressed and I had my first case of cellulitis this year and it was awful. I had MLD and bandaged my leg 8 years ago and after 3 moves and 3 children I am having problems with it. My LE is not fibrotic and hard yet and I'm hoping by going to get a refresher course in MLD and bandaging, I can help my LE. Lately, I am having problems with a full feeling on the right side of my breast.. had a mammogram and everything looked good. I thought maybe LE showed up in my arm and I'm going to a vascular specialist next week to talk about some of the symptoms I have been having. I am also really anxious about the fact that Lymphoma is common with LE patients. I did not know this... what types of symptoms do you have with that. Also, I have been running 3X week and have noticed that it bothers my LE... is it bad to jog... I don't jog fast... I just like getting my heartrate up.

PostPosted: Thu May 29, 2008 8:26 pm
by patoco
Hey NP :)

Super welcome to our family :!: :!: :!:

Lots of good questions and I'll try to answer them.

First, the fact that you have had LE for 20 years and you just had your first bout of cellulitis is actually a good sign. Usually, people will experience it within a few years of having LE.

The second good sign is that your LE isn't fibrotic. That is a major plus and that should make getting it back under control easier.


Studies that have been coming out do indicate that having lymphedema can make you more susceptible to lymphoma. Lord knows I'm a prime example of that having had it now for 13 years.

My LE is hereditary and there is also an unbelievable rate of lymphatic cancers in my entire extended family. So we (it has been suggested) may actually a an uncharted LE gene that somehow brings the two together. So, we are still the exception.

Generally, lymphoma would start on extremely fibrotic tissues that have been even further damaged. I had such massive cellulitis all my life an went through 3 of those butcherous "debulking" surgeries, which i think also contributed to the formation of lymphoma.

If you've had only one spell of cellulitis and the tissue is not fibrotic, I would say you are probably not in any risk.

Signs might include an unsual bruise that doesn't go away, an are of odd redness that kinda resemble something between a rash and cellulitis that doesn't go away. The symptom I showed was a perfect circle started growing on the back calf of my left leg. Since it was painless and never presented any problem, I actually ignored it forquite a time. Eventually, it started changing shades of red and continued to grow, so we had it biopsied.


The general rule of thumb on exercises with LE is that if you can do it without any problem, then it is probably ok to do it. Since you are now having problems, I would really urge you to slow down or stop it. That is your body telling you that you are pushing beyond it's ability to cope.

Also, the feeling of fullness you mentioned is another warning sign that you may be pushing yourself to hard. That fullness feeling is one of the very early signs of lymphedema.

I would strongly urge you to get an appointment with a certified lymphedema therapist for an all over evaluation. Infact, I would go to a therapist first as sometimes even vascular surgeons are pathetically non-informed about LE.

Don't ignore those warning signs.

Hope this helps, if ya have any questions, please don't hesitate to ask.

Very best to you :!: :!: :!: :wink:


Re: LE in right leg to knee

PostPosted: Sun Jun 01, 2008 5:01 pm
by jane
Exercise that involves running and jumping is usually not recommended for people with leg lymphedema. Can you switch to swimming? The water supports your leg and you may find it very refreshing, as well as being a good workout.

Re: LE in right leg to knee

PostPosted: Mon Jun 02, 2008 12:58 am
by patoco
Hi Ya Jane :D

Thanks.....soooooo very very true :!: :!: :!:

Swimming is just about the best exercise there is for those of us with lymhpedema. The gentle pressure of the water against the limb acts very much like MLD. I am always amazed at how much swimming moves fluids and reduces swelling.

We have a couple pages specifically on aqua therapy:

Here's the one for leg lymphedema:

Aqua Therapy in Managing Lower Extremity Lymphedema ... lymphedema

and for arm lymphedema:

Aqua Therapy for Postsurgical Breast Cancer Arm Lymphedema ... lymphedema

Here also is our page on exercises:

Exercises for Lymphedema ... lymphedema

Huff - puff - work it out now :wink: